PANS PANDAS UK

We urgently need positive lasting change for young people and families living with PANS and PANDAS. For too long, families have faced the challenges of living with these conditions alone, while those who are meant to help lack knowledge, awareness or UK guidelines for treatment and diagnosis. 

Click here to donate between 3-10th December 2024

By donating, you’re helping us to break the ongoing cycle of misdiagnosis and ineffective treatment for PANS and PANDAS and to build a reality where every young person and family living with these conditions has a bright and healthy future.

To make sure your donation is matched, you must donate online via our Big Give campaign page:  

Click here to donate between 3-10th December 2024

Simply complete the donation form and submit, it’s really that easy. And, you’ll even get the chance to Gift Aid your donation, to make your donation even more powerful, at no extra cost to you!


If you have any questions about our Big Give Christmas Challenge or how to support us beyond this campaign, or you’d like to discuss how your donation will be used, please contact Louise, Fundraising Lead at louise.holgate@panspandasuk.org 

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control