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SOUNDS GREAT, HOW DO I TAKE PART?

  1. Join our Challenge For PANS PANDAS UK Facebook Group 
  2. Choose your challenge, who you will do it with and when you will take it on during July.
  3. Set up your JustGiving page and start fundraising. You can do this by visiting the campaign page and clicking on the ‘Start Fundraising’ button.
  4. Share your page with your loved ones, employees, community groups and help to raise funds and awareness of PANS and PANDAS.

CHOOSE YOUR CHALLENGE

Need some inspiration of what challenge to take on?

I still have some questions

How do I start fundraising?

Simply set up a Just Giving page by clicking here

Can I fundraise offline?

Yes, contact Emma who can send you a paper sponsorship form and details or where to send your money after your challenge has been completed.

How will the money I have raised be spent?

Every penny that you raise will be used to provide support and information for families affected by PANS or PANDAS. Together, we will raise awareness, campaign for change and push for better research.

Is there a minimum that I need to raise?

No. We are so grateful for any amount that you can raise. Your support means the world to us.

When do I need to do my challenge?

Any time during July.

Can we do a challenge as a group?

Absolutely!

If you have any more questions, please email emma.bracegirdle@panspandasuk.org

Thank you so much for helping the PANS PANDAS community and supporting our campaign ‘Challenge for PANS PANDAS UK.’ You should find everything you need to be able to share the campaign here, but if you need anything else, please email emma.bracegirdle@panspandasuk.org.

What is Challenge for PANS PANDAS UK?

For families living with PANS and PANDAS, every day can be a challenge. We are asking people to take on a challenge this July to make sure that no family faces it alone.
Participants will #ChooseYourChallenge and get sponsorship to raise money for PANS PANDAS UK. 

How you can help

Help us to spread the word about our campaign by sharing it with your networks. Here is some suggested wording and images for you to share. Don’t forget to tag us in your posts. 

Facebook – www.facebook.com/panspandasuk/

Twitter – @PANSPANDASUK

Instagram – @pans_pandas_uk

Suggested posts

1. Support the PANS and PANDAS community and take on a challenge this July #ChooseYourChallenge. Together we can make change. www.panspandasuk.org/challenge

2. This July I will supporting PANS PANDAS UK by taking on a challenge.#ChooseYourChallenge. Join me. https://www.panspandasuk.org/challenge

3. What will be your challenge? I am going to FILLINBLANK. We need your help. www.panspandasuk.org/challenge.

4. PANS PANDAS UK are working to raise awareness of PANS and PANDAS. You can help. #ChooseYourChallenge this July. www.panspandasuk.org/challenge

5. Stand with the PANS and PANDAS community. #ChooseYourChallenge this July. www.panspandasuk.org/challenge

Suggested email template

Dear X,

I am taking on a challenge this July to support families affected by PANS and PANDAS. Can you help? https://www.panspandasuk.org/challenge

PANS and PANDAS are a set of conditions which result in an inflammation of the brain causing a variety of neuro-psychiatric conditions such as OCD, tics and eating restrictions. These conditions are often misdiagnosed or blamed simply on bad behaviour and poor parenting. 

PANS PANDAS UK is a charity working to raise awareness and understanding of these conditions amongst the general public and medical professionals. We need to raise more funds to help more families affected by PANS and PANDAS.

Watch Helen and Jessica’s story to find out more.

Join me this July and #ChooseYourChallange or if you are unable to, please consider sponsoring me. My donation page is here.

Thank you for standing with the PANS PANDAS community.

From, X 

P.S. You can find out more by visiting www.panspandasuk.org/challenge

You can also share Helen and Jessica’s story:

www.youtube.com/watch?v=H5Fiw0z1Z8g

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Here is a video that you can share about the challenge:
www.dropbox.com/scl/fi/b3sgj3szai5wlso9pwrtt/0803.mp4?rlkey=zdtgafqxqxpfe6ggfao941y3c&dl=0

Feel free to download and use our social media assets below:

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control