PANS PANDAS UK

BBC News celebrates Neil Gilson’s record-breaking Lake Geneva swim!

Neil Gilson breaks 38-year record swimming across Lake Geneva in 22 hours to raise awareness and funds for PANS PANDAS UK

BBC News celebrates Neil Gilson’s record-breaking Lake Geneva swim!

It’s not just Olympic swimmers making the headlines! BBC Spotlight and BBC News Devon have both highlighted Neil’s fantastic and record-breaking achievement.

“Stroke after stroke after stroke, imagine doing this for 22 hours…” That’s exactly what Neil did, bringing much-needed awareness and publicity to both children and adults living with the conditions of PANS and PANDAS.

This remarkable swim, breaking a 38-year-old record, was undertaken to raise awareness and funds for PANS PANDAS UK while completing the ‘CHALLENGE for PANS PANDAS UK’. His son Jack was diagnosed with PANS, a neuropsychiatric condition that affects children’s behaviour and social skills.

Neil’s determination and perseverance are truly inspiring. His journey not only highlights the importance of raising awareness for PANS and PANDAS but also shows what can be achieved with dedication and a touch of creativity.

Well done, Neil!

Watch the BBC interview HERE

Read the BBC article HERE

 

#PANS #PANDAS #LakeGenevaSwim #RecordBreaker #Inspiration

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control