PANS PANDAS UK

Getting The Word Out There

Getting The Word Out There

The 9th of October is an important day for the PANS and PANDAS community in the UK and across the world. It marks international PANS PANDAS Awareness Day.

As any family affected by PANS and PANDAS will tell you, awareness of these conditions is still low. This lack of awareness amongst professionals creates a huge barrier to diagnosis, treatment and support. Without awareness, families are left searching for answers and battling to find someone to help. PANS PANDAS Awareness Day is an opportunity for our community to come together and to spread the word far and wide so that these conditions are more readily recognised by those in a position to help.

It has been incredible to see the wave of awareness-raising activities taking place across social media and at in-person events. We are so grateful to every single person who has taken part, and to our international counterparts for their continued commitment to working collaboratively to bring about positive change. Together we will build brighter futures for all children, young people and adults living with PANS and PANDAS.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control