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Introducing Helen Huitson: Our New Community Champion!

Introducing Helen Huitson: Our New Community Champion! Image

Introducing Helen Huitson: Our New Community Champion!

We are really pleased to share with you the news that Helen Huitson has joined the PANS PANDAS UK team as Community Champion.

Many of you will already know Helen from her tireless awareness-raising efforts, her work with the Youth Advisory Board or her support with the teacher training events (not to mention the hugely successful family support group she runs in her local area, near Durham). In her new role with us, Helen will continue to build on her amazing work supporting families, help with fundraising activities and much, much more.

Both Helen and her daughter Jessica are hugely passionate about raising awareness and making sure that PANS and PANDAS are properly recognised by health, education and social care professionals. Helen says “I can’t wait to get started as Community Champion! 2024 is the year of change for the whole UK PANS PANDAS community and it is my privilege to be a part of making that happen.”

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control