PANS PANDAS UK

PANS and PANDAS UK at the Manchester Metropolitan University National Award for Special Educational Needs Co-ordination Conference 2024

PANS and PANDAS UK were thrilled to be asked for the second time to present education workshops on PANS and PANDAS to experienced and aspiring SENDCos alongside further SEND specialists.

 

A very special thank you goes to 15-year-old Jessica Huitson (living with PANDAS) who spoke eloquently and passionately about her own journey in education, including sharing her own toolbox of tips for teachers.  Feedback from attendees included how important it was to hear from the students themselves, and how powerful and impactful it was to hear Jessica’s story.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control