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PANS PANDAS UK APPG is Back in Action!

PANS PANDAS UK APPG is Back in Action! Image

PANS PANDAS UK APPG is Back in Action!

We are so pleased to share with you that the PANS PANDAS UK All Party Parliamentary Group AGM took place yesterday which means that we now have a date for the main APPG.

Tuesday 9th May at 2pm is the official date for the meeting. Please do encourage your MP to support the APPG by contacting the office of Robin Millar, MP for Aberconwy (pictured far left). We have provided a template letter here for ease.

If you can spare a few minutes to e mail your MP we would be very grateful. It really is important that we get as many MPs as possible supporting the APPG so that our voices can be heard loud and clear.

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  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
  • PPUK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control