PANS PANDAS UK

PANS PANDAS UK in Westminster

PANS PANDAS UK in Westminster

Earlier this week, PANS PANDAS UK hosted an All Party Parliamentary Group drop-in session in Westminster. We were joined by four wonderful representatives from our community and a good number of MPs and their staff who had been contacted by constituents affected by PANS and PANDAS.

We were pleased to be able to share the words of parents, young people and our fantastic PANS PANDAS UK Youth Board with everyone who attended via an animated video of everyone’s comments and questions.

A petition was raised by Wendy Chamberlain, Deputy Leader of the Scottish Liberal Democrats for a back bench debate, which was supported by all backbenchers present. This is a really exciting development which will help to keep our cause at the forefront of people’s minds. We warmly encourage anyone whose family has been affected by the conditions to write to their MP and ask them to show their support by signing this petition. You can find a template letter and more information about the MPs in attendance here.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control