PANS PANDAS UK

Revamped Information Leaflet for GPs and Paediatricians on PANS and PANDAS in the UK

We are thrilled to announce the launch of our revised and updated Information Leaflet tailored for GPs and Paediatricians. This crucial update aims to elevate awareness, equipping healthcare professionals with the latest insights in this rapidly evolving field of medicine.

Key Highlights:

Raising Awareness: The revised leaflet seeks to bridge the awareness gap among GPs, keeping them abreast of the dynamic developments in the realm of PANS and PANDAS.

Survey Insights: A 2020 PPUK survey discovered that a staggering 95% of GPs had not considered PANS or PANDAS as a potential diagnosis.

Commitment from Maria Caulfield: Health Minister Maria Caulfield reaffirmed a commitment in Parliament (September 2023) to ensure that individuals with PANS and PANDAS receive the care they need for improved outcomes.

What’s Inside:

Clinician-Reviewed Information: Discover comprehensive details about diagnostic criteria, appropriate first-stage testing, and treatments.

Call to Action:

Families: Help us reach every corner of the UK by sharing this leaflet with your local GP practice.

GPs: Spread the word among your colleagues! Scan the QR code to dive deeper and sign up for our PANS Physicians’ Network quarterly bulletin.

Together, let’s empower our healthcare community and pave the way for improved care for those with PANS and PANDAS

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control