PANS PANDAS UK

Resources

We’re Here to Help

Many people don’t know a lot about PANS and PANDAS or may never have even heard of them. Here you will find lots of information about what the conditions are, what the impacts are, and what support and advice is available.

An introduction to PANS and PANDAS

I am a parent/carer looking for information

I am a teacher looking for information

I am a health professional looking for information

I am an adult with PANS or PANDAS

I am a young person with PANS or PANDAS

Real Life Stories

Hear about PANS and PANDAS directly from the experts by experience. We’ve caught up with some of the people we’ve helped over the years to get an understanding on how PANS and PANDAS has effected them and how they are navigating life.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control