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PANS Physicians’ Network

What is the PANS Physicians’ Network?

The PANS Physicians’ Network was established in 2018 to provide a forum for medical professionals with an interest in PANS and PANDAS to collaborate and further their understanding of the conditions. It has been a thriving network and an important part of our charity mission to raise awareness and engage with healthcare professionals.
Over the years, the meetings have taken place face-to-face in major cities across the UK, and then switched to a virtual meeting model during the Covid-19 pandemic.

More recently, we have made the difficult decision to ‘press pause’ temporarily on the PANS Physicians’ Network virtual meetings.

Unprecedented progress is being made in the UK around improving the awareness, understanding and treatment of young people presenting with symptoms of PANS and PANDAS. We are working exceptionally hard to help to support this momentum, both in parliament, with NHSE and with the PANS PANDAS Steering Group. We are a tiny team and, as such, for now we have to focus our efforts on keeping this momentum going.

Until we are able to recommence these virtual meetings, we will be sending out quarterly bulletins to keep you updated on the latest progress in health services development for PANS and PANDAS and what is happening in terms of research into the conditions.

If you would like to join the network and be kept up to date on the latest news for health professionals on PANS and PANDAS, please do sign up to our new quarterly bulletin below.

Further Information

For further information for medical professionals, please visit our information on the PANS PANDAS Steering Group, international guidelines and our pages for GPs and CAMHS professionals.

Should any member of the network wish to discuss a case (or suspected case) of PANS or PANDAS with a clinician with experience of these conditions, then please do e mail us info@panspandasuk.org and we will endeavour to connect you.

Thank you so much for your continued interest in PANS and PANDAS.

Signup for the PPN Bulletin

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control