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Families First

PANS and PANDAS are still not widely recognised conditions.

Families face a postcode lottery for prompt assessment, diagnosis,
and treatment, leaving many to suffer in silence.

Because of this, the theme of our campaign is ‘Families First’
– something that is
 always at the core of everything we do.

Who are Big Give?

Big Give support charities to make an even bigger difference, asking philanthropists, foundations and businesses to match funds raised by small charities like ours.

We hope to raise £30,000 which will enable us to:

  • Improve education and training
  • Fund more in-person and online support groups 
  • Launch a dedicated email support service
  • Provide even more health, education and support resources! 

How to donate

To make sure your donation is matched, you must donate online
via our Big Give campaign page …but not too early!

Set your alarm, and please donate* what you can between
12pm 2nd – 12pm 9th December 2025

Any questions?

If you have any questions about our Big Give Christmas Challenge or how to support us beyond this campaign, or you’d like to discuss how your donation will be used, please contact Lynn, our Fundraising Lead.

Click here to donate (but not yet!)

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control