PANS PANDAS UK

Friends of PANS PANDAS UK

A new way to get involved

Friends of PANS PANDAS UK is a new way to support our charity on a regular basis, by signing up to become a Friend and donating as little as £3.50 every month, or £36 each year.

It is, however, about so much more than regular giving. It is about strength in numbers. It is about standing in unity as we call for more understanding by medical professionals, easier access to diagnosis and treatment in our NHS and more support for families are they navigate life with PANS and PANDAS. It is about showing people in power quite how many lives are affected by these life-changing conditions.

We really need your help.

If regular giving isn’t practical at this point in time, please consider a one-off donation. However big or small, we will be extremely grateful for your support. Equally, if you would love to get involved but have too many other financial commitments at the moment, we have a limited number of free Friendship places available – simply get in touch at friends@panspandasuk.org  

Friends will also enjoy these benefits:

  • A personal welcome letter, friendship certificate and wearable gift to help you raise awareness everywhere you go!
  • Early bird notifications of events and activities, including an invitation to a virtual Q&A session alongside our annual AGM, where you’ll get to ask the questions that matter most to you.
  • An exclusive Friends newsletter will be delivered directly to your inbox so you can see how your funds are helping the PANS PANDAS UK community.
  • Special access to direct communications and updates via our Friends of PANS PANDAS UK WhatsApp Announcement Group

Other ways to get involved

We understand that times are tough and that PANS and PANDAS can add further financial strain, making it impossible for you to join us as a Friend right now.

There are plenty of other ways you can support each other and our work, for example by sharing our resources and our social media posts, raising awareness of the conditions and the work we are doing, or joining us as a volunteer.

Thank you for everything you do to support our work, from everyone at PANS PANDAS UK

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control