PANS PANDAS UK

Supportive Organisations

Decorative image of trees shaped like people, with lots of leaves and a signpost with the PANS PANDAS UK logo on

 

Should you need any further information, help or support whilst affected by PANS or PANDAS, consider getting in touch with one of these wonderful organisations and alternative support groups: 

 

Childline text logo

For young people under the age of 19

Use online services or call 0800 11 11
Contact text logo

For parents and carers of disabled children

Call 0808 808 3555
Samaritans text logo

24 hour support for everyone

Call 116 123
Mind text logo

For anyone struggling with their mental health

Call 0300 102 1234
Young Minds text logo

For parents of young people and children

Parents helpline: 0808 802 5544
CALM text logo

For anyone affected by suicide or suicidal thoughts

0800 585858

International Facebook Support Groups

PANDAS PARENTS

Private support group for parents of children with PANDAS

PANS PANDAS Parent Support

Private group for parents and care givers affected by PANS or PANDAS

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control