PANS PANDAS UK

Ask the Experts

“It’s not a thinking problem, it’s not a behaviour problem, it’s not a psychiatric problem … Those are symptoms, they are not the cause”.

Amy Smith, Nurse Practitioner.

Ever wondered how the experts explain what PANS and PANDAS are? Why they are tricky to diagnose, or if recovery is possible? For PANS PANDAS Awareness Day 2024, our Youth Board asks the experts all of this and more.

Why ask the experts?

PANS and PANDAS are complex. It can be very difficult for people living with the conditions to understand the symptoms. That’s why our youth board decided to ask a panel of international experts some questions aimed to help others like them understand PANS and PANDAS a bit better.

Although this short video is aimed at children and young people, it is also really helpful for people of all ages and professions to understand a bit more about PANS and PANDAS.

Huge thanks to the PANS PANDAS UK Youth Board and also to the doctors who gave so generously of their time and knowledge.


Want to know more?

Why not visit our FAQ page which should have the answer that you’re looking for!

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control