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AGM 2025

Date Published: 26/08/2025

We invite our PANS PANDAS UK community to join us online for this year’s Annual General Meeting (AGM).

We will be sharing the news, activities and campaigning that have taken place during the past twelve months*, and discussing our future plans. Read on to see the agenda and speakers, or click below to register your spot:

  • Welcome and opening remarks from our Chair, Andy Koss
  • Our Chair’s report, covering key achievements and challenges we have faced
  • Our Treasurer, Phil Hall, will present the annual accounts, providing a financial overview and discussing our sustainability.
  • Our Chief Executive Officer, Vicky Burford, will provide a summary of our activities during the past twelve months*, our measure impact and achieved outcomes, and our strategic plan and future outlook.
  • Questions from our community – your opportunity to raise questions, make comments and provide feedback

We will provide a video recording, all presentation slides and typed minutes after the AGM.

*We will be reporting on activity between April 2024 and March 2025.

Photo of Vicky Burford smiling
Vicky Burford

I am the CEO and co-founder of PANS PANDAS UK. I’m so proud of the work we are doing to improve things for the PANS PANDAS community across the UK. In my spare time I can be found baking and decorating cakes or doing karaoke!

Phil Hall

I love numbers, so being a Trustee and Treasurer doesn’t feel like work at all! I’m retired, so I spend my free time going on holidays, gardening, seeing the family and being the Chairman of another charity; a theatrical group for young people.

Andy Koss

Having witnessed first-hand the effect that PANS and PANDAS has on children and families and the support provided by PANS PANDAS UK, I am keen to give something back to the charity and support the amazing work it is doing to raise awareness among schools, the medical profession and the wider community.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control