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Don’t know where to start?

Date Published: 19/01/2026

When a child becomes unwell, life can feel overwhelming. This is especially true in complex conditions like PANS and PANDAS.

Navigating support services, finding reliable resources, and connecting with others who understand can be daunting. Our community has told us how important clarity and reassurance is during difficult times. Professionals have told us they want support to find the right resources to help the patients, clients, pupils and families they are working with.

These live, interactive one-hour sessions walk through everything our charity offers, providing a clear introduction to:

  • Our resources – where to find the latest, most relevant, practical tools and information for you
  • Our training – available to medical and educational professionals
  • Our Facebook group – tips on how to connect with others, share experiences, and get the most out of this supportive community.

This tour isn’t just about learning where things are, it’s about feeling less alone. As one parent recently shared:

“I feel so overwhelmed since my child has become unwell. It would be really helpful for someone to explain the charity and what’s on offer to me clearly.”

  • Learn more about PANS and PANDAS, and how your child may be feeling
  • Learn about our resources on symptom management, neurodivergence, healthcare, education and so much more
  • Understand how and where to access the help and support your family need
  • Discover inspiring real life stories, videos, artwork and poetry
  • Hear about new ways to volunteer, fundraise and be part of the charity’s community.

When is the next tour?

We hold a tour on Tuesdays, one every month. If you would like to join a tour, register here so we can share the relevant link:

DateTime
9th June4-5pm
14th July7-8pm
18th August11am-12pm
8th Sept4-5pm
13th Oct7-8pm
Remember, you don’t have to navigate this journey alone. We are here to help.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control