UPDATED!! – Exciting opportunity for families living with PANS and PANDAS to take part in Education Research!
UPDATED!! – Exciting opportunity for families living with PANS and PANDAS to take part in Education Research!
An exciting opportunity for families living with PANS and PANDAS to take part in Education Research!
PANS and PANDAS UK has been approached by PhD researcher Jen Shute, seeking to involve our community in her important education research. This study will include children, young people, and their families living with PANS and PANDAS, as well as other families affected by chronic illness. The University of Plymouth has granted ethical approval for the research.
More details about the research and the process of participating are available via the QR code. Please note that this research is not being undertaken by the charity, and any further queries should be directed to Jen Shute.
What is the research project?
“I feel like a ghost.” How included do children and young people with chronic conditions feel in their education, and what can we learn from their lived experiences?
Anecdotally, children and young people with a chronic condition may experience difficulties in:
This research is guided by a Lived Experience Advisory Panel, made of up of young people who are living with chronic conditions themselves. The research will consider, what works well for the inclusion of this group of young people in education? What are the challenges, for schools/educators, for the young people themselves, and for their parents/carers?
How can I take part?
Jen is seeking individuals to share their insights and experiences. This may be a child or young person with a chronic condition, a parent or carer, or someone who works in a school or college supporting or teaching a young person who misses days due to their chronic condition.
The survey for parents/carers is now open with the Information Sheet and Consent Form incorporated.- https://app.onlinesurveys.jisc.ac.uk/s/plymouth/i-feel-like-a-ghost-parents-and-carers-final-1
If any children or young people wish to take part, then please contact Jen.Shute@plymouth.ac.uk
