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Including all learners

Date Published: 06/06/2025

New resource offers vital support for children and young people with medical needs in schools

Many children and young people living with PANS or PANDAS face significant challenges in having their medical needs recognised and supported within the school system.

A lack of awareness and understanding often leads to inadequate support, leaving families and professionals alike struggling.

A new publication, ‘Including Learners with Medical Needs in School, A Guide to Best Practice,’ aims to change that. This much-needed resource provides practical guidance for schools to better understand and support children and young people with complex medical conditions, including PANS and PANDAS.

“We’re proud to see PANS and PANDAS included in this valuable and much-needed resource.”
Tina Coope, PANS PANDAS UK Education Lead

Special thanks go to Cath Kitchen, Chair of the National Association for Hospital Education, for bringing this guide to life.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control