DONATE

PANS PANDAS at Prime Minister’s Questions

Date Published: 08/04/2024

PANS PANDAS at Prime Minister’s Questions

North East Fife MP Wendy Chamberlain called on the UK government to recognise PANS and PANDAS today at Prime Minister’s Questions, and raised the case of a 9-year-old constituent.

She called on the government to commit to recognise the conditions. She highlighted the suffering caused through the lack of appropriate treatment guidance. Dominic Raab, who was standing in for Rishi Sunak, promised to write with a full response and arrange a meeting with the relevant minister.

Our charity chairperson, Vicky Burford, said “We welcome Wendy Chamberlain’s intervention on behalf of the thousands of children who are needlessly suffering with these truly devastating conditions. The current lack of recognition and appropriate treatment pathways in the UK ruin childhoods. We are delighted that the Government has offered to meet with Wendy, and we hope that the urgency of creating dedicated clinics and clear service provision within the NHS will prompt decisive action.”

Footer Pattern

Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control