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PANS PANDAS UK Exhibits at the TES SEND Show

Date Published: 13/10/2025

This year marked PANS PANDAS UK’s second year exhibiting at the TES SEND Show, and it was once again a valuable opportunity to connect with families and professionals from across education, health, and social care. 

Throughout the event, we met many practitioners who were keen to learn more about PANS and PANDAS. Many had heard of the conditions but were unsure about the details, while others were already supporting children and young people with a diagnosis or suspected diagnosis. Encouragingly, there was a clear sense that awareness of these conditions is growing across SENCO and wider professional networks. 

A common theme in our conversations was the anticipation for clearer guidance ahead. Many people we spoke to shared their hopes that the forthcoming Local Authority Guidance and the Royal College of Paediatrics and Child Health endorsed UK clinical guidelines will bring much-needed clarity to referral pathways, treatment, and support for children and young people. 

We were also delighted to meet teachers and educational psychologists who had attended our education training sessions or planned to do so, and others who were keen to signpost colleagues to the charity resources. 

We would to thank all the families and professionals who took the time to come and speak with us. The growing conversations around PANS and PANDAS across different sectors show that the community’s voice is being heard. 

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control