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Seen and Supported: a conference for the community

Date Published: 14/11/2025

The weeks have flown by since we closed the final session of our online conference ‘Navigating PANS and PANDAS’ last month.

Since then, we have been busy getting the recordings on our website, and collating feedback and data to help us understand what impact the conference had, and what lessons we can learn from the event. 

We have been absolutely blown away by the response to the conference, from families and from professionals alike. Over 1300 people registered to attend from all over the globe, with consistently good feedback. All 12 webinars received recommendation ratings of at least 9/10. 

Families reported feeling empowered, validated and grateful to have learned new practical tools to help them navigate these complex conditions. Professionals who attended noted that the conference had helped them to improve their practice and the support they were able to offer families and young people. 

“It was absolutely brilliant. Thank you for organising such an informative webinar free of charge! The vast majority of treatment, information and guidance for PANDAS patients is very costly. So, to access such a fantastic webinar is wonderful. I feel extremely grateful.” 

– A conference attendee

We are so grateful to all our speakers for sharing their knowledge so generously and to all the attendees for supporting the event. 

If you missed any of the sessions, don’t forget they are available to watch on demand here. Topics included health, education, financial advice and wellbeing support.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control