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Special Needs Jungle shines light on PANS and PANDAS

Date Published: 29/04/2025

Thank you to Special Needs Jungle for their invaluable support in raising awareness about PANS and PANDAS. Their recent article sheds much-needed light on these often-misunderstood conditions.

By highlighting the NHS’s recognition of PANS and PANDAS and the conditions’ inclusion in the WHO International Classification of Diseases, the piece provides crucial information that can help pave the way for better diagnosis and treatment.

The publication also serves as a call to action for professionals across health, education, and social care sectors.

By emphasising these conditions and advocating for better diagnosis, treatment, and support, we can help ensure that children and young people affected by PANS and PANDAS receive the care they deserve, bridging gaps in understanding and support.

Read the full article here

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control