We’ve won the lottery! (Kind of…)
We are delighted to announce that the amazing work of our Youth Board has been recognised by the National Lottery!
Over the past few years our Youth Board has gone from strength to strength, working hard to support other children and young people affected by PANS and PANDAS. We are so proud of everything they have achieved, and we are delighted that the National Lottery have also recognised this awesomeness!
We have just been told that the National Lottery Community Fund will be supporting our Youth Board over the next eighteen months. This funding will go towards making the board even stronger, through the co-creation of fantastic projects and resources, and by fuelling new exciting ways for them to raise awareness of PANS and PANDAS.

Over the next 18 months, our Youth Board will develop:
- New resources for children, young people and their families.
- A dedicated, moderated chat space for our young members
- Advocacy days and in-person activities for young people
- Increased awareness and recognition amongst health and education professionals
“Our Youth Board members are united by their lived experiences of PANS or PANDAS. Despite the difficulties they face, they remain unfailingly enthusiastic, creative and supportive of one another.
Their drive to support other young people living with PANS and PANDAS is an inspiration. It is wonderful that their work has been recognised by the National Lottery Community Fund, and that we can now help them to have an even bigger impact on every young person affected by these conditions.”
Katy Hindson, Health and Policy Lead
And there’s more!
To make sure the magic happens, we have recruited a dedicated Youth Worker. Clarise will work closely with members of our Youth Board to support other children and young people affected by PANS and PANDAS. Together, they will collaborate on fantastic youth-led projects designed to raise awareness, challenge miseducation and influence key decision-makers.
