Volunteering

Would you like to get involved in helping to build brighter futures for people with PANS and PANDAS?

As a very small charity, with a very big mission, we would be delighted to hear from you if you have some time and skills that you think would be put to good use volunteering with us.

There is plenty of work to be done, so if you have an idea of what you might be able to do to help out, we would love to hear from you.

Join our Community Reference Group

Another way of volunteering in a flexible way is to become a member of our Community Reference Group. Our goal is to form a pool of representatives from across the UK, with a range of different experiences that we can call upon for community insight into specific projects and workstreams.  The membership will be unlimited, and we will use responses here to ensure that we are gathering a breadth of experience.  We hope that everyone will be able to contribute in a way which is accessible to them, including but not restricted to:

• Completing surveys
• Offering feedback
• Consulting on various projects
• Co-creating resources
• Occasionally attending meetings if required
  – these will be held online, via Teams.

We will also seek your consent to add you to a WhatsApp group where we will keep you up to date with upcoming opportunities to get involved. Participation is flexible and members can engage with the projects that resonate with them and opt out of others.

For more information please see the ⁠Terms of Reference.