PANS PANDAS UK

Recent High Court Judicial Review including a diagnosis of PANS

A recent High Court judicial review found that a Local Authority failed to provide the special educational support (section F) required in a child’s EHCP (Education Health and Care Plan) and reaffirms that Local Authorities are under ‘absolute duty’ to secure special education provision.

Oliver Persey of Garden Court Chambers, and solicitor, Adam Mercer of Sinclairslaw, explain to Special Needs Jungle what happened and offer four practical steps if the same issue arises for your child or young person.    

It is significant that PANS was included as one of the diagnoses in this case, and will be helpful to share with any supporting professionals. The case highlights the importance of:  

  • The inclusion of the diagnosis of PANS in an EHCP 
  • Needs linked to the diagnosis of PANS being recognised and met 
  • The detrimental impact on the child when these needs are not met 

‘The Claimant is currently 11 years old. He is a disabled child who has diagnoses of Attention Deficit Hyperactivity Disorder (“ADHD”), Autistic Spectrum Disorder (“ASD”) and an immune mediated component to a neurobehavioral disorder known as Paediatric Acute-onset Neuropsychiatric Syndrome (“PANS”).’ 

The case has been included as part of a PANS and PANDAS status update that has been sent out to all Local Authorities in England – more details are available here.

For more information and details about the High Court Judicial Review. The case was also covered by the BBC

 

 

 

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control