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Community support

Supporting someone with PANS or PANDAS can feel very isolating. Our volunteer-led support chats and in-person groups are here to show you that you are not alone.

Find your nearest local support group, the next virtual support chat, or join our Facebook support group.

Regional support groups

Our amazing volunteers host in-person support groups right across the country. Why not pop along and meet other families for a cuppa and a chat?

Use this map to locate your nearest group. You can find dates, times and venues on our Events Calendar.

We are always looking to set up more in-person groups. If you are interested in setting one up near you, please get in touch, and we will help you every step of the way.

Virtual support chat

Join this friendly online parent-led support group which meets every fortnight on Zoom. We meet every 1st and 3rd Wednesday of the month.

Drop in anytime between 8.30-10.30pm to make new connections and share experiences.

Simply select the relevant date on our calendar to register and access the log in details.

Find the next support chat

Private Facebook support group

Our PANS PANDAS UK private Facebook Support Group is run by our volunteers. It provides a safe, confidential space for parents and carers to support each other, share information and make connections.

Join our group
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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control