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Community Conference

Date: Saturday 10th October

Audience: parents, carers and adults (18+) affected by PANS or PANDAS

Our Community Conference is an in-person day dedicated to parents, carers and adults (18+) affected by PANS and PANDAS and we very much hope that you will be able to join us.

This event will be a fantastic opportunity to share information about the new treatment guideline currently being developed, for community members to connect with one another, and for the charity to provide valuable updates and support information. We are thrilled that we will be able to include a Panel Q&A with leading UK and international clinicians.

We are currently working with our community members to finalise the agenda for the day, to ensure it is shaped by what our community needs. We will publish it here as soon as it is ready.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control