Community Conference
When: Saturday 10th October
Where: Ashorne Hill Conference Centre in Warwickshire
Who: parents, carers and adults (18+) affected by PANS or PANDAS
Welcome to day three of Perspectives on PANS, our landmark three-day conference.
Our Community Conference is an in-person day dedicated to parents, carers and adults (18+) affected by PANS and PANDAS, and we very much hope that you will be able to join us.
This event will be a fantastic opportunity to share information about the new treatment guideline currently being developed, for community members to connect with one another, and for the charity to provide valuable updates and support information. We are thrilled that we will be able to include a Panel Q&A with leading UK and international clinicians.
With special thanks to our Community Reference Group members, and to the wider community for completing our Community Conference Survey – we are building this day around what you have told us is most important to you! Scroll down for the agenda and speaker list, or grab your tickets here!
What will the day involve?
We will have an arrival window from 8.15am to 9am, when tea, coffee and breakfast pastries will be available. The day will include a number of breaks, with refreshments, and lunch* will also be provided.
Based on community feedback, our agenda will include:
- Updates on the new clinical guideline
- Exploring what happens after the clinical guideline is published
- Insights and stories of hope from the community
- Sessions with clinicians
- Expert-led workshops on education, nutrition and emotional wellbeing
- Workshops for adults affected by PANS and PANDAS
- Opportunities to connect with other community members
- A panel Q&A with all our experts
How much are tickets?
We understand that everyone’s financial circumstances are different, and we do not want price to be a barrier to our community members being able to access this informative and supportive event.
We would like to express our immense gratitude to the PANS PANDAS UK community and supporters, who have already raised funds during our Big Give campaign, as this means we can heavily subsidise the cost of tickets.
You will see we are offering tickets at a few price points, and we invite you to select what feels affordable for you.
If paying for a ticket will prevent you from attending, please email our Conference Manager, Claire Baggott, who will gladly support you:
claire.baggott@panspandasuk.org
Whatever you pay, your ticket will include access to our full day of sessions, opportunities to network and connect with others, as well as refreshments throughout the day and lunch*.
*When you book your ticket, we will ask if you have any dietary or access needs that we need to take into account.
Who will be speaking?
We would like to express our thanks to our expert clinicians who will be joining us at this event:
International clinicians:
- Professor Jennifer Frankovich (Rheumatologist, Stanford University)
- Dr Susan Swedo (Paediatrician and Chief Science Officer for PANDAS Physicians Network and Scientist Emeritus at the National Institute of Health).
UK clinicians:
- Professor Rajat Gupta (Paediatric Neurologist, Birmingham Children’s Hospital)
- Dr Ashley Liew (Paediatric Neuropsychiatrist, Maudsley Hospital, London)
- Professor Ming Lim (Paediatric Neurologist, Evelina Children’s Hospital, London)
- Dr Tim Ubhi (Paediatrician and Director of the Children’s e-hospital and London PANS clinic)
“I am so excited about the PANS PANDAS conference. After all the fast-paced changes across sectors over the past few years, it feels like the perfect opportunity to pause, take stock, and reflect.
For me, the conference is just as much about coming together to meet and celebrate the incredible community who have supported our family since our daughter’s onset, as it is about learning more about the important workstreams underway to support young people living with PANS.
Our community is strongest when we come together—it’s when I have found understanding, strength, and hope. I cannot wait!”
– A member of our Community Reference Group
