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Our Perspectives on PANS Research Symposium took place on Thursday 8th October.

Medical professionals and researchers came together to connect, share insights and discuss key clinical and scientific issues relating to PANS and PANDAS.

The day included:

  • Lived experience insights
  • Insights into current UK research, the JLA research priorities, and the Surveillance Study
  • An overview of PANS PANDAS Unveiled by Isca Evidence, University of Exeter
  • Poster presentations from early career researchers
  • Breakout workshops: clinical research, laboratory research and mental health research
  • A facilitated panel discussion.

Experts by experience

What happens when patients and communities become partners in research? Through perspectives from both researchers and community members, this talk explores the mutual benefits of patient involvement and demonstrates how partnership can lead to more relevant, inclusive, and impactful research.

Kate Boddy, Isca Evidence


Mapping the research landscape

An overview of the NIHR funded evidence synthesis project PANS PANDAS unveiled. Delivered by Dr Michael Nunns and Sam Febrey from the Isca Evidence Synthesis team, University of Exeter.

Dr Michael Nunns and Sam Febrey, Isca Evidence


The UK research landscape

An overview from Dr Ashley Liew and Professor Ming Lim on the James Lind Alliance priority setting, current UK research landscape and the UK Surveillance Study.

Dr Ashley Liew and Professor Ming Lim



Steven Malcherczyk Rising Researchers

PANS and PANDAS research poster presentations from early career researchers:

  • Riann Alexander, Anglia Ruskin University
  • Archana Bhattacharyya, London School of Economics
  • Tia Chahal, University of Leeds
  • Hayley Gilfillan, University of Dundee
  • Maisy Higgs, University of Oxford
  • Megan Parks, University of Bristol
  • Eleanor Tobelem, University of Dundee

This session was kindly supported by Rosper MEP in memory of Steven Malcherczyk, with sincere thanks to his family.

Dr Ashley Liew and Professor Ming Lim


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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control