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Guest blogs


Ellen Adby, Youth Board member

August 2026

Ellen first experienced symptoms of PANS aged 13 years old. Now 25, she wanted to write a guest blog to share her story and advice with other young people with PANS or PANDAS who are considering their options for further education.


Carrie Bignell, Deputy Head Teacher

July 2026

Carrie Bignell is a Deputy Head Teacher and parent of teenager living with PANDAS. Carrie wanted to write a guest blog to share her family’s story, and to highlight how schools can make a difference to young people affected by PANS or PANDAS.


Hannah Downing, Psychotherapist

April 2026

Hannah Downing is a Psychodynamic Therapist and parent of five-year-old son living with PANDAS. Hannah wanted to write a guest blog to share her family’s story, and to provide strategic support to other PANS and PANDAS parents.


Rob Wakeling, founder of Bow Tie Teacher
Rob Wakeling,
founder of Bow Tie Teacher

April 2026

Rob Wakeling is an Ofsted-rated ‘Outstanding’ maths teacher and the founder of the Bow Tie Teacher. Rob and his wife Nicola contacted us to share their family’s story, and to make a generous offer to young people who are currently out of education because of their experience of PANS or PANDAS.


If you would like to write a guest blog, please use this form to get in touch.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control