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PANS PANDAS UK is celebrating the successful delivery of Perspectives on PANS.

This event was dedicated to advancing understanding, research, clinical practice, and family support around PANS and PANDAS. We would like to thank everyone who contributed to, and attended, this momentous event.

 

“This conference was an excellent opportunity for improving awareness, empowering families, driving clinical understanding and excellence, and fostering collaboration between researchers and clinicians both across the UK and internationally.”

– Vicky Burford, PANS PANDAS UK CEO.

Watch this space!

Resources and recordings from the conference will be shared here as soon as we have them available to publish. All ticket holders will receive an email advising them of how they can access all conference materials at this time.

 

If you are interested in donating to PANS PANDAS UK to help us to support our work when the new treatment guideline is published, please click here.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control