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Briefing pack for MPs

Ahead of the Backbench Business debate on diagnosis and treatment for PANS and PANDAS, scheduled to take place in the House of Commons Chamber on 25th June, we have prepared this briefing pack to support MPs who plan to attend or speak in the debate.

This pack brings together key background information, current challenges facing patients and families, and the actions we are asking the Government to take. If you have any questions, please do not hesitate to contact our Health and Policy Lead, Katy Hindson: katyhindson@panspandasuk.org.

Briefing document

Please use this briefing document to familiarise yourself with PANS and PANDAS, prior to the upcoming backbench debate.

Click the cover to read and download.

Charity manifesto

Our ‘Count Us In’ manifesto explores the challenges facing our community and what action you can take to support families affected by PANS and PANDAS.

Count Us In: A Manifesto for PANS and PANDAS front page

Click the cover to read and download.

Roundtable review

MP feedback and reflections following our Youth Boards presentation to Parliament.

Click the cover to read the full review:

SEND reforms: MP briefing

Investigating the potential implications of SEND reforms on the education of children affected by PANS or PANDAS.

Click the cover to read and download:

Survey results

Significant data from our 2026 community survey

Click to expand:

Medical case study

Real-life examples of PANS and PANDAS

Click to read and download:

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control