In the press: on camera
These external presentations feature members of the PANS PANDAS UK team speaking at conferences or on webinars; raising awareness and having important discussions about PANS and PANDAS.
Academy of Nutritional Medicine This educational video channel provides information about causes, testing and treatment of a range of infectious diseases, and other health conditions.
PANS and PANDAS progress update
June 2026
Vicky, our CEO, explores the substantial progress being made through the PANS PANDAS Steering Group, including national guideline development, research initiatives, parliamentary engagement, professional training, and international collaboration — all aimed at improving recognition, care, and outcomes for those living with PANS and PANDAS.
‘PANS and PANDAS: A bridge between science, healthcare and European policies’ was an international conference organised by Associazione Genitori PANS PANDAS BGE ODV.
Speaking to European Parliament
May 2026
Vicky, our CEO, and Katy, our Health and Policy Lead, attended a significant international PANS conference. They presented on the efforts underway in the UK to ensure that everyone with PANS and PANDAS has access to prompt, appropriate healthcare on the NHS. Their presentation includes share a timeline of the conditions in the UK, including both the challenges families have faced for too many years and the hopeful signs that a shift towards better care is underway.
