PANS PANDAS UK

Connecting with families and professionals in Norwich 

PANS PANDAS UK representatives Tina Coope (Education Lead) and Sarah Young, former Special School Headteacher

We were proud to exhibit at the Family Voice Norfolk Conference

The Family Voice Norfolk annual conference provides a fantastic opportunity to engage with local health and education stakeholders, as well as to hear directly from families, children and young people affected by PANS and PANDAS.

It was also heartening to hear about the current knowledge and workstreams taking place in the area and to discuss ways we can continue improving awareness and support.  

 A huge thank you to everyone who stopped by to share their stories, ask questions and to facilitate awareness and understanding of the conditions. Your engagement makes a real difference.

 

 

 

 

 

 

 

 

 

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control