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Furthering research into immune conditions and mental health

Furthering research into immune conditions and mental health Image
D-CYPHER X PANS PANDAS UK Flyer 2

We are delighted to announce that D-CYPHR (the DNA, Children + Young People’s Health Resource) is collaborating with PANS PANDAS UK.

D-CYPHR want to get more families involved in health research that could help improve our understanding and develop new treatments for many conditions, including immune diseases and mental health conditions. The more people with a certain condition who join D-CYPHR, the more research they can facilitate in areas that might benefit our community in the future.

D-CYPHR are looking for participation from all children and young people regardless of whether they have medical conditions or not – effective health research depends on inclusion of all.

The programme is open to any child and young person aged 0 –15 in the UK. The decision to join is voluntary and, for ages 6+, it is made by parent/guardian and child together.

D-CYPHR is not a PANS & PANDAS research study, but we hope that by collaborating and raising awareness together we can champion the need for more research.

Visit the D-CYPHR website for more information about the programme and how to sign up:

Click here to find out more.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control