PANS PANDAS UK

It’s time to re-launch the APPG

Save the date

We are delighted to have the support of Wendy Chamberlain MP in working to relaunch the PANS PANDAS All-Party Parliamentary Group.

New rules for APPGs, and the advent of a new Government have meant that the APPG has temporarily lapsed. We need YOUR help to get the APPG up and running again.

How can you help?

We are fortunate to have a drop-in event arranged in November for MPs to come and speak to the charity team, family representatives and professionals about the issues facing our community.

Please get in touch with your MP and ask them to attend the event on your behalf and be your voice in Parliament.

Simply download this invitation and send it to your MP via e mail or on social media.

 

Thank you for your support. Together we can make change happen.

To find out more about the PANS PANDAS APPG, click here.

 

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control