PANS PANDAS UK

PANS mentioned in Together Scotland’s State of Children’s Rights Report 2024

Convention on the Rights of the Child image

Together Scotland – The Scottish Alliance for Children’s Rights, launched their State of Children’s Rights report on 6th December 2024 – one year after the Scottish Parliament unanimously voted to incorporate the UN Convention on the Rights of the Child into law in Scotland. 

A young person with PANS shared their experience in education as part of Together Scotland’s consultation on children’s rights, which has been included in the official report. 

Read ‘Toby’s Story’ on Page 70. 

We thank Toby for sharing their experience, and we hope that by doing so, it will help to grow awareness of PANS and PANDAS in Scotland, supporting PANS PANDAS UK’s goal of ensuring that the rights of children and young people affected by the conditions are being met. 

 

New! Our State of Children’s Rights Report 2024 | Together Scotland 

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control