PANS PANDAS UK

PANS PANDAS APPG set to reconvene

New rules for All-Party Parliamentary Groups (APPG) and a new Government in 2024 meant that the PANS PANDAS APPG temporarily lapsed earlier this year.

We are delighted to share the news that the reconvened APPG will hold its inaugural general meeting early in 2025, boasting an incredible 26 members! Such a show of support is testament both to the efforts of the PANS PANDAS community in engaging their MPs in raising awareness in Parliament, and also to the growing recognition amongst MPs that more must be done to improve care and support for people living with these conditions in the UK.

To find out more about the APPG, please click here.

We look forward to updating you further once the first meeting has taken place in the New Year. We will then be able to share details of members and officers with you.

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control