PANS PANDAS UK

Setting the record straight: Britain’s Tourettes Mystery

Setting the record straight: Britain’s Tourettes Mystery

This week, we joined other charities to highlight the misinformation and errors shared through the Channel 4 programme, Britain’s Tourettes Mystery.

The programme was factually incorrect and misleading in its presentation. We support the corrections and clarity from Tourettes Action and other health organisations.

Dan McLean from PANS PANDAS UK, said: “Britain’s Tourette’s Mystery was an opportunity lost. A substantial increase in neurological conditions in children and young people is a potential healthcare crisis. The programme could have busted myths instead of broadcasting fresh ones. Scarlett Moffatt is a fine advocate for demystifying complex and stigmatised conditions, sadly the programme has bemused and hurt so many of the people it might have supported”.

The Full Release from Tourettes Action

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control