PANS PANDAS UK

Two years, two conferences!

We are pleased to share that PANS PANDAS UK is looking to host two conferences in the next two years. Provided that we are successful in securing funding, we intend to hold an online conference in 2025, and an in-person conference in 2026. 

Next year’s provisional conference will be a day for parents, carers and adults living with PANS and PANDAS to come together online for a series of informative and supportive sessions from experts, with the opportunity for a live Q&A with a panel of experts. It will be an opportunity to ask questions, share experiences and to learn more about helpful strategies. 

In 2026, following on from the publication of the new UK clinical guidelines, we are planning a conference in collaboration with a leading UK university medical school. We anticipate that this event will bring together international and UK healthcare professionals and researchers to share knowledge and best practice. It will be an opportunity to build interdisciplinary working relationships which will lead to the best possible outcomes for people living with PANS and PANDAS.  

With this in mind, our annual Big Give Christmas Challenge this year will be focused on raising funds for these two conferences. We are currently looking for pledges from corporate supporters so, if you know any companies who might be willing to support us with a pledge of £100 or more, then please do ask them to click here! The deadline for pledges is the 30th August. 

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Glossary

  • ADHD
    Attention Deficit Hyperactivity Disorder
  • AE
    Auto-immune Encephalitis
  • ARFID
    Avoidant Restrictive Food Intake Disorder
  • ASD
    Autism Spectrum Disorder
  • CAMHS
    Child and Adolescent Mental Health Service
  • CBT
    Cognitive Behavioural Therapy
  • Dysgraphia
    difficulty writing by hand
  • EHCP
    Education, Health and Care Plan
  • Emotional Lability
    Rapid, and dramatic changes in mood (for example uncontrollable laughter to crying)
  • Enuresis
    wetting
  • GAS
    Group A Streptococcal infection
  • NHSE
    NHS England
  • NICE
    National Institute for Health and Care Excellence
  • OCD
    Obsessive Compulsive Disorder
  • PP
    PANS PANDAS
  • PPUK
    PANS PANDAS UK
  • PPN
    PANS Physicians Network
  • PPSG
    PANS PANDAS Steering Group
  • SENCo
    Special Educational Needs Coordinator
  • SIGN
    Scottish Intercollegiate Guidelines Network to the glossary
  • Tic
    Sudden repetitive movement (motor tic) or sound (vocal tic) which is difficult or impossible to control