PANS PANDAS Steering Group releases update

PANS PANDAS Steering Group releases update

More than a year has passed since the PANS PANDAS Steering Group (PPSG) published the 2023 PANS PANDAS Working Group Statement. It has become increasingly clear to the PPSG that the recommendations within this statement have not had as significant an impact on the variation in care for patients presenting with acute-onset neuropsychiatric symptoms as intended.

As a result of this, we are pleased to share that the PPSG has now issued an update, informing clinicians of the establishment of the PANS Guideline Development Group and signposting them to the recommendations made in the earlier statement. It provides an important reminder that all stakeholder organisations within the PPSG recommend that clinicians should be aware that the absence of a multidisciplinary team service should not lead to referrals of these patients being rejected, nor that clinicians should be prevented from exercising their own proficiency and judgement.

The statement, again, signposts clinicians to existing international peer-reviewed treatment guidelines and advises that regional and tertiary services may be contacted for discussion.

You can read the statement in full here, and download it here.